ALL FRUITEXPORT SPAIN, in collaboration with the AEEG, the Spanish Association of Patients of Glycogen Storage Disease, and FEDER, the Spanish Federation of Rare Diseases.
Every day, more than 3 million families suffer isolation and loneliness due to suffering a rare disease. They are alone, without resources and do not know where to turn. They receive the dramatic impact of the diagnosis and the impotence of feeling that no one knows their disease. From FEDER and the AEEG, these families are helped to regain hope.
Composed of more than 180 associations, at FEDER they work in integrated form with the families with rare diseases through projects and services destined to improve their quality of life. In these associations, the patients are received, protected, understood, heard, oriented, guided, educated, given refuge, sheltered, counselled, inspired, advised, accompanied....
In short, They are Given Hope.